Sunday, November 25, 2012

Surgery # 3!!!

Jilliana's 3rd surgery was postponed to August 6th due to her testing positive for a cold.  Her surgery went perfectly!  After surgery she went to the CICU (cardiac intensive care unit) but was moved to the step down unit the next morning!  A lady that works with the kids after surgery told me she has never seen a child move as quickly to the step down unit as Jilly did:)  She did wonderfully however her oxygen levels were much lower than they should have been, (they were low 80's sometimes even the 70's and should have been in the 90's) and they couldn't figure out why because she was acting fine.  (Before her surgery they were in the 60's!)  Usually the chest tube is the thing that keeps kids in the hospital the longest because it can keep draining and draining but she got the chest tube out (that was disturbing to watch and the ONLY time I broke down because they had to tie this string really tight to close the open hole where the tube was and they were pinching her skin she screamed so bad it was terrible) and was still on oxygen which wasn't the norm and was pretty annoying.  They discovered why her levels were so low which is kind of hard to explain, as I'm typing this it's November and her surgery was in August so I can't remember all the specifics but basically there was a vessel somewhere that was opened that shouldn't have been.  So after being in the hospital for 2 weeks they were going to do a heart cath August 20th to see if they could find this vessel and close it.  Mommy was pretty depressed about this, Jilly was almost completely recovered and was now going to have another procedure, more recovery time and there was a good possibility that they wouldn't be able to find the tiny vessel or if they did wouldn't be able to close it because it could rupture or what have you.  The morning of the heart cath (a Monday), the cardiologist informed me that quite a few different cardiologists had been discussing her situation because over the weekend her levels had improved  so they decided if they were still good on Monday they wouldn't do the heart cath.  Well her oxygen levels WERE good.  They think that tiny vessel closed on it's own which apparently happens sometimes, the body corrects itself.  Her cardiologist called it miraculous.  I was so happy and thanked him and he said "I didn't do anything, I guess there's a God somewhere haha" so after 2 weeks in the hospital the day she was supposed to have the heart cath, she went home!  So many people prayed for Jilly and I truly can't thank everyone enough for their prayers and for caring about her!  I was able to be there to send Aidan and Rylee to their first day of 3rd and 1st grade (Aug 22nd) which I was worried about missing!  God always provides, He always comes through.  We just have to trust in HIM and give it to HIM He is in control.  When we got home from the hospital Jilly didn't even make it to the house she went straight to the playground in our apt complex to play with her friend Maddie:)  Thank you Lord for protecting Jilly I'm so thankful she is HERE!!!          


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